Guest Writer – Alex What an amazing journey

Hi Family, Friends and followers.
This morning I’m lying next to my amazing wife after a few tough weeks in hospital. She is resting and pain free. Anoula’s disease has recently taken a huge toll on her health and energy, but it has not had the slightest impact on her courageous attitude.
I am laying here with mixed emotions of sadness, ease and content. I am extremely proud of Her. Anoula’s travelled on a journey of self healing all while helping and inspiring others but never complaining. We always said she could write her own story and what she has chosen to include in this story is a reflection of the real Anoula. Traveling on the bus with her has been truly inspirational with life moments that most will never experience. It has brought the best out of both of us and made the A team even more.
The tidal waves of support from all of you makes us both feel incredibly fortunate and I appreciate Feeling fortunate in this type of situation would not be a common emotion.
Last night we met with Anoula’s world leading oncologist. To simplify and avoid the medical jargon, Anoula’s story is in it’s final chapter. We are able to make her comfortable during this time. This, including the fact that all of Anoula’s wishes have been acted upon and all the medical avenues have been explored, makes me feel comfortable as well.
I ask that everyone takes a moment today to send Anoula some thoughts, well wishes, prayers, positive energy or what ever you have in your arsenal to boost and her give her complete confidence for her new beginning.
I thank you all for following Anoula’s incredible journey and apologise if this post isn’t up to the usual standard. The guru can’t type or advise me in the functionality at this time.
Best
Alex
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Radiotherapy Treatment #5: August

August is my least favourite month of the year. 

It shouldn’t be. 

It’s the month both my parents celebrate their birthday’s. The month Alex’s dad was born and also the month his wise and beautiful Buba came into this world. 

But more recently it became the month I lost both my maternal grandparents and being from the Southern Hemisphere, it is the last month of winter. A season I am not that fond of now that I seriously lack my own winter coat. 

Winter coat aside, the main reason I am not a fan of August, is because of a dream (or maybe it was a nightmare) I had about 5 years ago. In 2010 we were living in our tiny, mouldy one bedroom basement flat in Maida Vale. For us it was just perfect. The location was central and the neighbourhood was great, friends and pubs nearby. But one morning in early January that year I woke in a lather of sweat only to recall a dream I had from the hours before. I was Angelina Jolie (she has been a dream theme that has continued during my disease in many different forms). 

The dream was very clear and simple. I had a similar tattoo to the one that she has on her arm listing out the dates, longitude and longtitude points for each of the places that her children were born. Mine was slightly different. I had only one date that I remembered. The others had been scribbled out. It was my date of death. 13 August 2013. 

I kept this to myself for a few years only telling a few people mainly because I thought I was crazy and I didn’t want to think about it. But as the date approached the more and more apprehensive I became about it and for my family. I changed dates of flights, appointments and importantly (in my eyes) the date of my minor surgery I was scheduled to have ‘clean my tubes’ out. After three years of no success, I bit the bullet decided I would see an actual gynaecologist about my inability to fall pregnant. The GPs up til now had said we only have half the picture with what’s going on with Alex, so it was time to have my side investigated. I would need to have a more invasive test. For me I feel like this is when my clinical trial experiment all started…. All scheduled on the date of my death???? Well I fixed/controlled that and changed the date quick smart! The OCD me!! I changed the date, making sure it was the day before allowing the 13th to be a recovery day, which suited me fine. I would be safely wrapped in bed not able to go anywhere….It was a definately a forced change in my trajectory as Zoe would say. And, in my mind I haven’t worked out if I was not meant to (or ready) to go down that motherhood path (which began within 3weeks of the surgery) which set me travelling down this harsher more savage road that has irreversibly changed mine and those around me paths forever. I not sure it matters, just that I left it and a new road opened and I took it. Open and willing. Trying to do so with open arms and a newly found heart and soul. I still feel lucky…

So August isn’t my favourite, but I know just a tick away Spring is due and I get to remember the most magicial week of my life. I know this is not living mindfully and it a cycle I will eventully break. My today is all about making new wonderful memories in the moment. My brother is home from o/s and I missed him dearly, we are ‘housesittying’ in another beachside suburb which is new and exciting, and it is Alex and mines 5th year wedding anniversary. And although each year is different and more complex than the next I wouldn’t change what we have created for anything. Our path is hard, but we don’t do normal. That’s not the reason why we are together. That’s not the couple we are. I wouldn’t have it any other way. 

  
Love you poopie xx